Related Publications

 

Advance Care Planning

Related Research, Reports and Other Publications

For any additional information or resources, please feel free to contact the University of Calgary's Health Information Network.


Newspaper Articles

Talking Frankly at the End of Life - The New York Times

A reader's comment on the above article


Plan for a Good Death, Talk About Your Wishes - Globe and Mail

A reader's comment on the above article


2009

Alfonso, Heather. The importance of living wills and advance directives. Journal of Gerontological Nursing 2009;35(10):42-45. View Abstract Here

 

Albert, Steven M.; Whitaker, Adriene; Rabkin, Judith G.; et al. Medical and supportive care among people with ALS in the months before death or tracheostomy. Journal of Pain and Symptom Management 2009;38(4):546-553. View Abstract Here

 

Apatira, Latifat; Boyd, Elizabeth; Malvar, Grace; et al. Hope, truth, and preparing for death: Perspectives of surrogate decision makers. Annals of Internal Medicine 2008;149(12):861-869. View Abstract Here

 

Clements, John M. Patient perceptions on the use of advance directives and life prolonging technology. American Journal of Hospice and Palliative Medicine 2009;26:270-276. View Abstract Here

 

Davison, Sara N. Advance care planning in patients with end-stage renal disease. Progress in Palliative Care 2009;17(4):170-178. View Abstract Here

 

Downey, Lois; Engelberg, Ruth A.; Curtis, J. Randall; et al. Shared priorities for the end-of-life period. Journal of Pain and Symptom Management 2009;37(2):175-188. View Abstract Here

 

Delgado, Enrique Machare; Callahan, Amy; Paganelli, Galia; et al. Multidisciplinary family meetings in the ICU facilitate end-of-life decision making. American Journal of Hospice and Palliative Medicine 2009;26:295-302. View Abstract Here

 

Duggleby, Wendy; Wright, Karen. Transforming hope: How elderly palliative patients live with hope. Canadian Journal of Nursing Research 2009;41(1):204-217. View Abstract Here

 

Frelick, Kathryn. The use and misuse of advance directives. Long Term Care 2009;19(2):22. View PDF'd Article Here

 

Fried, Terri R.; Bullock, Karen; Iannone, Lynne; et al. Understanding advance care planning as a process of health behaviour change. Journal of the American Geriatrics Society 2009; 57:1547-1555. View Abstract Here

 

Givens, Jane L.; Kiely, Dan K.; Carey, Kristen; et al. Healthcare proxies of nursing home residents with advanced dementia: decisions they confront and their satisfaction with decision-making. Journal of the American Geriatrics Society 2009;57:1149-1155. View Abstract Here

 

Godolphin, William. Shared decision-making. Healthcare Quarterly 2009;12(Sp): e186-190. View Abstract Here

 

Golden, Adam G.; Corvea,Martha H.; Dang,Stuti; et al. Assessing advance directives in the homebound elderly. American Journal of Hospice and Palliative Care 2009;26:13-17. View Abstract Here

 

Goodlin, Sarah J. Palliative care in congestive heart failure. Journal of the American College of Cardiology 2009;54:386-396. View Abstract Here 

 

Hauser, Joshua M. Lost in transition: The ethics of the palliative care handoff. Journal of Pain and Symptom Management 2009;37(5):930-933.
View Abstract Here 

 

Hirschman, Karen; Kapo, Jennifer; Karlawish, Jason. Identifying the factors that facilitate or hinder advance planning by persons with dementia. Alzheimer Disease and Associated Disorders 2008;22(3):294-298. Journal of Pain and Symptom Management 2009;38(4):546-553. View Abstract Here

 

Hupcey, Judith; Penrod, Janice; Fenstermacher, Kimberley. A model of palliative care for heart failure. American Journal of Hospice and Palliative Medicine 2009; 26:399-404. View Abstract Here 

 

Johanson, Gary A. The defined trial period in ethical decision making. Journal of Pain and Symptom Management 2009; 38(3):473-476.
View Abstract Here 

 

Johnson, Megan-Jane; Kanitsaki, Olga. Ethics and advance care planning in a culturally diverse society. Journal of Transcultural Nursing 2009; 20:405-416. View Abstract Here 

 

Kaldjian, L.C.; Erekson, Z.D.; Haberle,T.H.; et al. Code status discussions and goals of care among hospitalised adults. Journal of Medical Ethics 2009;35:338-342. View Abstract Here

 

Malcomson, Heather and Bisbee, Shannon. Perspectives of healthy elders on advance care planning. Journal of the American Academy of Nurse Practitioners 2009;21(1):18-23. View Abstract Here 

 

McAdam, Jennifer L. and Puntillo, Kathleen. Symptoms experienced by family members of patients in intensive care units. American Journal of Critical Care 2009;18:200-209. View Abstract Here 

 

Mitchell, Susan L.; Teno, Joan M.; Kiely, Dan K.; et al. The clinical course of advanced dementia. The New England Journal of Medicine 2009; 361(16):1529-1538. View Abstract Here 

 

Mularski, Richard A.; Puntillo, Kathleen; Varkey, Basil; et al. Pain management within the palliative and end-of-life care experience in the ICU. Chest 2009;135(5):1360-1369. View Abstract Here 

 

Murray, Mary Ann; Wilson, Keith; Kryworuchko, Jennifer; et al. Nurses’ perception of factors influencing patient decision support for place of care at the end of life. American Journal of Hospice and Palliative Medicine 2009; 26(4):254-263. View Abstract Here 

 

Murtagh, Fliss, E.M.; Spagnolo, Antonio G.; Panocchia, Nicola; Gambaro, Giovanni. Conservative (nondialytic) management of end-stage renal disease and withdrawal of dialysis. Progress in Palliative Care 2009;17(4):179-185. View Abstract Here 

 

Peck, Marlys R. Personal death anxiety and communication about advance directives among oncology social workers. Journal of Social Work in End-Of-Life & Palliative Care 2009; 5:49-60. View Abstract Here 

 

Putman-Casdorph, Heidi; Drenning, Cindy; Richards, Samantha; and Messenger, Kimberly. Advance directives: evaluation of nurses’ knowledge, attitude, confidence, and experience. Journal of Nursing Care Quality 2009;24(3):250-256. View Abstract Here 

 

Radwany, Steven; Albanese, Terry; Clough, Lynn; et al. End-of-life decision making and emotional burden: Placing family meetings in context. American Journal of Hospice and Palliative Medicine 2009; 26(5): 376-383. View Abstract Here 

 

Rocker, Graeme M.; Young, Joanne; Simpson, A. Catherine. Advanced chronic obstructive pulmonary disease: more than a lung disease. Progress in Palliative Care 2009;17(3):117-125. View Abstract Here 

 

Schickedanz, Adam D.; Schillinger, Dean; Landefeld, C. Seth; et al. A clinical framework for improving the advance care planning process: start with patients’ self-identified barriers. Journal of the American Geriatrics Society 2009;57:31–39. View Abstract Here 

 

Vlaminck, Lores. Communication challenges at the end of life. Long Term Care 2009; 19(2):10-16. View PDF'd Article Here 

 

Volandes A.E.; Paasche-Orlow M.K.; Barry M.J.; et al. Video decision support tool for advance care planning in dementia: randomized controlled trial. BMJ (clinical research ed.)2009;338:b1964. View Abstract Here 

 

Wittenberg, Stephen; Cohen, Lewis. Estimating prognosis in end-stage renal disease. Progress in Palliative Care 2009;17(4): 165-169. View Abstract Here 

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2008

Alderman, Jeffrey S.; Nair, Baishali; Fox, Mark D. Residency training in advance care planning: can it be done in the outpatient clinic? American Journal of Hospice and Palliative Medicine 2008;25:190-194. View Abstract Here

 

Auerbach, Andrew D.; Katz, Rebecca; Pantilat, Steven Z.; et al. Factors associated with discussion of care plans and code status at the time of hospital admission: results from the multicenter hospitalist study. Journal of Hospital Medicine 2008;3(6):437-445. View Abstract Here

 

Deep, Kristy S.; Griffith, Charles H.; Wilson, John F. Discussing preferences for cardiopulmonary resuscitation: what do resident physicians and their hospitalized patients think was decided? Patient Education and Counseling 2008;72:20-25. View Abstract Here

 

Gillick, Muriel R.; Volandes, Angelo E. The standard of caring: why do we still use feeding tubes in patients with advanced dementia? Journal of the American Medical Directors Association 2008;9(5):364-367. View Abstract Here

 

Maillet, Julie O’Sullivan; Potter, Robert L.; Heller, Linda. Position of the American Dietetic Association: Ethical and legal issues in nutrition, hydration, and feeding. Journal of the American Dietetic Association 2008;108(5):873-882.
View Abstract Here

 

Moon, Paul J. Death-talks: transformative learning for physicians. American Journal of Hospice and Palliative Care 2008;108(8):873-882. View Abstract Here

 

Mosenthal, A.C.; Murphy, P.A.; Barker, L.K.; et al. Changing the culture around end-of-life care in the trauma intensive care unit. The Journal of Trauma 2008;64(6):1587-1593. View Abstract Here

 

Payne, Judith K.; Thornlow, Deidrie K. Clinical perspectives on portable do-not-resuscitate orders. Journal of Gerontological Nursing 2008;34(10):11-16.
View Abstract Here

 

Raivio,MM; Maki-Petaja-Linonen,AP; Laakkonen, ML; et al. The use of legal guardians and financial powers of attorney among home-dwellers with Alzheimer’s disease living with their spousal caregivers. Journal of Medical Ethics 2008;34(12):882-886. View Abstract Here

 

Simon, J.; Murray, A.; Raffin, S. Facilitated advance care planning: what is the patient experience? Journal of Palliative Care 2008;24(4):256-64.

 

Thomas, Roger; Wilson, Donna M.; Justice, Christopher; et al. A literature review of preferences for end-of-life care in developed countries by individuals with different cultural affiliations and ethnicity. Journal of Hospice and Palliative Nursing 2008; 10(3):142-161. View Article Here

 

Volicer, Ladislav. End-of-life care for people with dementia in longterm care settings. Alzheimer’s Care Today 2008;9(2):84-102. View Abstract Here

 

Weinick, Robin M.; Wilcox, Susan R.; Park, Elyse R.; et al. Use of advance directives for nursing home residents in the emergency department. American Journal of Hospice and Palliative Medicine 2008; 25: 179-183 originally published online Apr 10, 2008. View Abstract Here

 

Wingate, Sue and Wiegand and Lynn-McHale, Debra. End-of-life care in the critical care unit for patients with heart failure. Critical Care Nurse 2008;28:84-94. View Abstract Here

 

Wright, Alexi A.;Zhang, Baohui; Ray, Alaka; et al. Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. Journal of the American Medical Association 2008;300(14):1665-1673. View Abstract Here


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2007

Chochinov, H.M. Dignity and the essence of medicine: the A, B, C, and D of dignity conserving care. BMJ (clinical research ed.) 2007;335 (7612):184-7.
View Abstract Here

 

Con, Andrea. Cross-cultural Considerations in Promoting Advance Care Planning in Canada. BC Cancer Agency 2007. View PDF Here; View Website Here

 

Educating Future Physicians in Palliative and End-of-Life Care. Facilitating Advance Care Planning: An Interprofessional Educational Program: Curriculum Material; 2007. View PDF Here 

 

Educating Future Physicians in Palliative and End-of-Life Care 2007. Facilitating Advance Care Planning: An Interprofessional Educational Program: Teachers Guide; 2007. View PDF Here

 

Huggins,Mary Anne; Brooks, Laura. Discussing end-of-life care with older patients: what are you waiting for? Geriatrics and Aging 2007;10(7):461-464.
View Abstract Here

 

Schimpf, Jan and Self, Gordon. Personal directives – a trigger for a good conversation. Western Catholic Reporter 2007; November 26.
View Article Here

 

Sulmasy, Daniel P.; Hughes, Mark T.; Thompson, Richard E.; et al. How would terminally ill patients have others make decisions for them in the event of decisional incapacity? A longitudinal study. Journal of the American Geriatric Society 2008;55(12): 1981-1988. View Abstract Here


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2006

Chittenden, E.H. Discussing Resuscitation preferences with patients: challenges and rewards. Journal of Hospital Medicine 2006;1(4):231-40. View Abstract Here


Dunbrack, Janet. Advance Care Planning: the Glossary Project, Final Report (unpublished). Health Canada 2006. View Report Here 

 

Gallagher, Romayne. An approach to advance care planning in the office. Canadian Family Physician 2006;52(4):459-464. View Article Here 

 

Heyland, Daren K.; Dodek, Peter; Rocker, Graeme; et al. What matters most in end-of-life care: perceptions of seriously ill patients and their family members. Canadian Medical Association Journal 2006;174(5). View Abstract Here 

 

Heyland, Daren K.; Frank, Chris; Groll, Dianne; et al. Understanding cardiopulmonary resuscitation decision making: perspectives of seriously ill hospitalized patients and family members. Chest 2006;130:419-428.
View Abstract Here 


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2005

Alberta Heritage Foundation for Medical Research –Tech Note: Advance Directives and Health Care Costs at the End of Life 2005.
View PDF'd Report Here 

 

Selecky, Paul A.; Eliasson, Col Arn; Hall, Richard I.; et al. Palliative and end-of-life care for patients with cardiopulmonary diseases: American College of Chest Physicians position statement. Chest 2005;128:3599-3610. View Abstract Here 

 

2004

Proulx, Kathryn and Jacelon, Cynthia. Dying with dignity: the good patient versus the good death. American Journal of Hospice and Palliative Care 2004;21:116-120. View Abstract Here

 

2003

Lynn, Joanne and Goldstein, Nathan. Advance care planning for fatal chronic illness: avoiding commonplace errors and unwarranted suffering. Annals of Internal Medicine 2003;138(10):812-818. View Abstract Here


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2000-2002

Canadian Medical Association Journal bioethics series of articles published in 2000-2002 can be found here.

 

Bowman, K. W. and Hui, E. C. Bioethics for clinicians, 20: Chinese bioethics. Canadian Medical Association Journal 2000;163(11):1481-1485.
View Abstract Here

 

Coward, H. and Sidhu, T. Bioethics for clinicians, 19: Hinduism and Sikhism. Canadian Medical Association Journal 2000;163(9):1167-1170.
View Abstract Here

 

Daar, A. S. and al-Khitamy, A. B. Bioethics for clinicians, 21: Islamic bioethics. Canadian Medical Association Journal 2001;164(1):60-63.
View Abstract Here

 

Ellerby, J. H.; McKenzie, J.; McKay, S., et al. Bioethics for clinicians, 18: Aboriginal cultures. Canadian Medical Association Journal 2000; 163(7):845-850. View Abstract Here

 

Goldsand, G., Rosenberg, Z. R. and Gordon, M. “Bioethics for clinicians, 22: Jewish bioethics.” Canadian Medical Association Journal 2001;164(2):219-222. View Abstract Here

 

Markwell, H. J. and Brown, B. F. Bioethics for clinicians, 27: Catholic bioethics. Canadian Medical Association Journal 2001;165(2):189-192.
View Abstract Here

 

Pauls, M. and Hutchinson, R. C. Bioethics for clinicians, 28: Protestant bioethics. Canadian Medical Association Journal 2002;166(3):339-343.
View Abstract Here


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