Advance Care Planning

Pediatrics

For Families

"Advance care planning" involves talking with your child's doctor about short and long-term care goals when your child has a serious illness. It starts with an open discussion about what to expect from the illness. It can include conversations about treatment options and palliative care (care of patients who have life-threatening illnesses). It can also involve the writing of formal plans and orders.

Adapted from Position Statement, Canadian Paediatric Society
www.caringforkids.cps.ca/whensick/PlanningCare.htm

The Canadian Paediatric Society hosts a wonderful website called Caring for Kids. We recommend:

When Your Child is Sick: Making treatment decisions for babies, children and teens
www.caringforkids.cps.ca/whensick/TreatmentDecisions.htm
When your Child is Sick: Planning care for children and youth with serious medical conditions.
www.caringforkids.cps.ca/whensick/PlanningCare.htm
"My Wishes" - a workbook for school age children who would like to participate (draw or write) in their care decisions. Available from www.agingwithdignity.org/ for $5 (US).

In the Calgary area, "Goals of Care" provide direction regarding specific health interventions, transfer decisions, locations of care and limitations on interventions for a patient. There are a number of pediatric resources to support your family in the process of determining a Goals of Care Designation for your child if he or she has a serious illness:

"Hear My Voice" - an activity for families who are coping with a potential life-threatening illness to encourage them to talk about their values and goals to guide decision making during the illness experience.

We would really like to hear your thoughts and suggestions about the activity.
Adults: Please click here to complete a very short on-line survey.
Children/Youth: Please click here to complete a very short on-line survey.
"Hear My Voice - Family Notes" - a document to help you record your thoughts after you participate in the "Hear My Voice" activity.

"Hear Our Voice" - a workbook for parents and guardians to support advance care planning for children and youth.

Available Fall 2010

For more information on Advance Care Planning and the Pediatric Goals of Care Designation Policy please contact

Sharron Spicer, MD, FRCPC at (403) 955-5466

or e-mail us at:

myvoice@albertahealthservices.ca

Advance Care Planning Home Current Highlights Advance Care Planning: Goals of Care Designation Policy Background Advance Care Planning Tools Goals of Care & Goals of Care Designations Forms & Processes Education Resources FAQ's Related Publications, Reports & Research Pediatrics Links Contact Us	Advance Care Planning Pediatrics For Families "Advance care planning" involves talking with your child's doctor about short and long-term care goals when your child has a serious illness. It starts with an open discussion about what to expect from the illness. It can include conversations about treatment options and palliative care (care of patients who have life-threatening illnesses). It can also involve the writing of formal plans and orders. Adapted from Position Statement, Canadian Paediatric Society www.caringforkids.cps.ca/whensick/PlanningCare.htm The Canadian Paediatric Society hosts a wonderful website called Caring for Kids. We recommend: When Your Child is Sick: Making treatment decisions for babies, children and teens www.caringforkids.cps.ca/whensick/TreatmentDecisions.htm When your Child is Sick: Planning care for children and youth with serious medical conditions. www.caringforkids.cps.ca/whensick/PlanningCare.htm "My Wishes" - a workbook for school age children who would like to participate (draw or write) in their care decisions. Available from www.agingwithdignity.org/ for $5 (US). In the Calgary area, "Goals of Care" provide direction regarding specific health interventions, transfer decisions, locations of care and limitations on interventions for a patient. There are a number of pediatric resources to support your family in the process of determining a Goals of Care Designation for your child if he or she has a serious illness: "Hear My Voice" - an activity for families who are coping with a potential life-threatening illness to encourage them to talk about their values and goals to guide decision making during the illness experience. We would really like to hear your thoughts and suggestions about the activity. Adults: Please click here to complete a very short on-line survey. Children/Youth: Please click here to complete a very short on-line survey. "Hear My Voice - Family Notes" - a document to help you record your thoughts after you participate in the "Hear My Voice" activity. "Hear Our Voice" - a workbook for parents and guardians to support advance care planning for children and youth. Available Fall 2010 For more information on Advance Care Planning and the Pediatric Goals of Care Designation Policy please contact Sharron Spicer, MD, FRCPC at (403) 955-5466 or e-mail us at: myvoice@albertahealthservices.ca
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